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Crohn's and Colitis UK is the working name for The National
Association for Colitis and Crohn's Disease (NACC)
Website
last updated:
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WELCOME TO THE CAMBRIDGESHIRE AND WEST SUFFOLK GROUP WEBSITEHOW TO KEEP WELL WITH IBD The Department of Gastroenterology at Addenbrooke’s held a Cambridge Crohn’s and Colitis Service Open Day recently which was well attended. Participants were able to hear a number of presentations from Health Professionals and then enjoyed some light refreshments. This was followed small discussion groups. Our Group were able to hold an information stand which was well received and we are pleased to say we were able to recruit a number of new members to the Group. Specialist Nurse Allison Nightingale was one of the speakers and a copy of the slides she used to make her presentation “Keeping Well with IBD” are in our Newsletter Section and well worth a look. We apologise that the quality is a little grainy due to the process of converting them from slides to PDF format. MORE ABOUT THE GROUP Our group covers a wide area served by Addenbrookes Hospital, Cambridge, Hinchingbrooke Hospital, Huntingdon, Newmarket Hospital and West Suffolk Hospital, Bury St Edmunds. Our members come from as far west as Sandy, Bedfordshire, as far east as Stowmarket, Suffolk, as far south as the north of Essex and as far north as Peterborough. If you suffer, or are a parent or supporter of someone who suffers from Crohns or Ulcerative Colitis and live in these areas this is the group for you - WELCOME! For more information about how NACC Groups can help you please go to our About NACC Groups link at the top of this page. Each of our hospitals have specialist IBD nurses whose helpline numbers are detailed in our "Get in touch" section further down this page We hold regular meetings at each of the hospitals for members to come along and hear from our medical professionals about current treatments, research and help available, as well as to have the opportunity to meet other sufferers. We also publish a quarterly newsletter and get involved in various fundraising and awareness raising events. We ALWAYS welcome new members and love to see new faces at our meetings so please do come along and join us and find out more about our Group and how we can help and support you. We do appreciate that the nature of IBD prevents those who would like to travel to meetings from doing so. For that reason we hope to be able to use our website and newsletter as more convenient means of communication. We will always reply to emails and requests for information so do please get in touch. Get In Touch Contact your Group Organising Team 0845 130 6842 NACC-in-Contact Information Service Get help from NACC Information Officers on IBD related issues, ring: 0845 130 2233 Monday-Friday 10am-1pm (answer phone service outside these hours) Disability Benefits Call the Information Line above to arrange a telephone appointment with a trained volunteer for help with Disability Living Allowance or Attendance Allowance Parent to Parent Talk to another parent who has a child with IBD. Telephone appointments can be made by telephoning the Information Service. IBD Specialist Nurses The following IBD Nurses have kindly agreed that we can put their hotline numbers on this site. Please ensure that you ONLY contact the nurse at YOUR hospital.. The nurses can only help their own hospital patients. Addenbookes Hospital, Cambridge - IBD Specialist Nurse - Allison Nightingale - 01223 257212 Hinchingbrooke Hospital, Huntingdon - IBD Specialist Nurse - Irene Dunkley - 01480 363521 West Suffolk Hospital, Bury St Edmunds - IBD Specialist Nurse - Tracy Lacey - 01284 712611 |
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