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Crohn's and Colitis UK
South Wales Group

Crohn's and Colitis UK is the working name for the National Association for Colitis and Crohn's Disease (NACC)

 

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Crohn's and Colitis UK is the working name for The National Association for Colitis and Crohn's Disease (NACC)
A charity registered in England Number 1117148
A charity registered in Scotland Number SC038632
A company limited by guarantee in England: company number 5973370

 

Website last updated:
27 January 2012

 

 

News

Crohn's and Colitis UK (NACC) Merchandise now available online
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Red Hot Ted's Big Adventures

This summer we collected some pics of Red Hot Ted letting his fur down at the Reading Festival, lazing by a pool in in Portugal, and even enjoying the views at the Grand Canyon, - see 'Teddy Tomlins' above! It got us thinking that it would be fun to do something with these pics. Do you have a Red Hot Ted in your family? If so, email us your snaps of Ted on his adventures, whether abroad, at a local event, or just having fun (sw@crohnsandcolitis.org.uk) and, each month, we will choose the best pics to put up on the News Panel of our website. If you don't already have a Ted in your family, they can be purchased from the merchandise section of the Crohn's and Colitis UK main website - link at the top of this panel. We're looking forward to seeing just what your Ted's get up to! 

'Jam for James' Charity Night Success

A charity fundraising night organised by Phil Rookyard and the friends and family of James Harris took place at O'Neills, Cardiff, on Sunday 18th September. The night included live acoustic sets from 6 artists, a charity auction and raffle. The night was a great success and a fitting tribute to James who sadly passed away earlier this year. We would all like to thank everyone who was involved with making the evening happen, but a special thank you to Phil and Clare who were the driving force behind this. Earlier this month Phil and Clare presented a cheque for for the monies raised by this event, a staggering £1,290, to our Chair, Rachel. The good news doesn't stop there - Phil and Clare have said they would like to become involved with the South Wales Organising Team, which is great news.

Radyr Golf Club donation

As you may have already read, Radyr Golf Club in Cardiff had chosen support Crohn’s and Colitis UK as one of their nominated charities for the 2011. Our Treasurer, Zara Evans, was invited to the annual prize giving event on Saturday 26th November. Zara was presented with a cheque from the members of the club for £2,750. We are obviously knocked out by this fabulous show of generosity, and extend our warmest thanks and appreciation to all of the Radyr Golf Club members and staff who made this possible. 

John Morris Retires

At the 2011 AGM in October, John Morris stepped down as Chair of the South Wales Group. In 2008, the Group was close to disbanding as there was only 4 members. John put a call out to the South Wales membership to try and create a new Organising Team, offering to put himself forward as Chair. Over the last 4 years John has put his energy into guiding the Team through all of our fundraising activities and meetings. His persistence has resulted in a successful team of 13 people, and a steady increase in funds raised that is looking towards the £4,000 mark this year. We owe John a huge debt of gratitude, and are so pleased that he has said he will stay in touch and attend the odd meeting.

We'll take this opportunity to congratulate our new Chair, Rachel Owen, who we're sure will do just as great a job as her predecessor.


Hello and welcome to the homepage of the South Wales Group of Crohn's and Colitis UK.

Please use the links to the left of the screen to find out a little more about who we are, what it is we hope to achieve, upcoming events, how to receive or download our newsletter, and how you can take an active part in attending or helping to organise Crohn's and Colitis UK events in SouthWales. We hope you find the information on these pages useful. If you have any queries, suggestions or articles that you would like to share with fellow Crohn's and Colitis UK members, please don’t hesitate to contact us via our email or telephone number on the ‘contact us’ link.

Keep an eye on our Activities Page. With the invaluable help and organisation of the South Wales IBD Nursing Team, we have been able to support some extremely informative IBD evenings at local hospitals. The subjects so far have included Diet, Surgical Options, Medicines (usage and side-effects) and Bowel Screening. The events happen at different venues across South Wales to ensure everyone has the chance of attending at least one talk, relatively close to home. Each event has a Question and Answer session on each topic, giving IBD sufferers and their families a chance to ask the experts about anything they are interested in or worried about.

Patient Education Evening

Dr Hawkes, Consultant Gastroenterologist, and the IBD Nurses, have very kindly organised a Patient Education Evening at the Royal Glamorgan Hospital. The talk will take place at 6.00pm on Wednesday 14th March, 2012, in the Lecture Theatre. The title of Dr Hawkes talk is 'Endoscopic Appearances of Crohn's and Colitis'. Rhian Thomas, Dietician, will also give a talk on Diet and IBD. Both Rhian and Dr Hawkes will take questions from the floor after their talks. The South Wales Group of Crohn's and Colitis UK will attend, with information, literature and merchandise. We look forward to meeting other members and their families.

THe Red Hot Ball. To be held on World IBD Day - Saturday 19th May 2012 - at Radyr Golf Club, Cardiff CF15 8BS, this is the first of what the South Wales Group hope will become an annual event. The evening will include dinner, dancing to a live band, a charity auction and more. Tickets will be on sale for £40 each, with all profits going to Crohn's and Colitis UK. If you have any queries, or if you would like to purchase tickets, please email: SWGroupevents@hotmail.co.uk  We will reply with details of how to purchase the tickets. Places will be limited and on a strictly 'first-come-first-served' basis. This is an opportunity for members and their families and friends to come together socially and help a cause that is close to all of our hearts. If you are able to publicise this event, there is a poster that is available to download from our newsletters page. It is a pdf called: RedHotBall.

Late last year we ran a competition with the First Year BA Graphic Communications students at Atrium, Glamorgan University to design a logo for our Red Hot Ball. The standard of entries was outstanding and we had a very hard job to decide which was the winning design. Eventually, we chose the design above. The logo was designed by Rhys Lowry who, as the winning design, received a logo design book from us all. We would like to take this opportunity to thanks all of the students and staff At Atrium for their hard work and input. We intend to use the logo on all materials relating to our Red Hot Ball. 

IBD Nurse Training Funding

The South Wales Group actively supports IBD Nurses training in the South Wales area through contributing towards the cost of their studies. If you are an IBD Nurse who would like to be considered for some financial help, please contact us through our links on the contact page of this website.

South Wales IBD Nurse Contacts:

Neath Port Talbot Hospital: Phedra Dodds: 01639 862 551

Neville Hall Hospital: Deborah Knight-Davies: 01873 733 137

Princess of Wales Hospital: Shiree Bissmire: 01656 754 090

Royal Gwent Hospital: Allyson Lewis: 01633 656 055

Royal Glamorgan Hospital: Lisa Deering: 01443 443 099

University Hospital Llandough: Helen Ludlow: 029 2071 6403

University Hospital of Wales: Kate Shone: 029 2074 6510

University Hospital of WalesClaire Sadlier (Paediatrics): 029 2074 5331

 Withybush Hospital: Kerrie Johns: 01437 773 571

Newsletters

Our latest newsletter is being worked on right now and we hope to have it in the post before the end of February. Previous newsletters can be downloaded from our Newsletter link on the left hand side of this page.

Organising Team Members

We are always trying to think of new ways to raise funds for Crohn's and Colitis UK. At the moment the OT has 13 members. The more people we have on board, the more events we are able to attend, the more potential there is for raising awareness and funds for research. This also enables us to have definite areas of responsibility when taking on the fundraising tasks, and the running of the Team. If you would like to become a member of the Team, have an area of expertise that you think may help us, or have any ideas for fundraising events, please contact us through the email link. We would love to hear from you.






Literate Systems

This site's description is: This Crohn's and Colitis UK South Wales Group website is for people with Ulcerative Coitis and Crohn's Disease (Inflammatory Bowel Disease or IBD), their families and friends, and health professionals working in this field. It is provided by Crohn's and Colitis UK, which is a UK Charity.  Crohn's and Colitis Uk is the working name for the National Association for Colitis and Crohn's Disease (NACC). and the keywords associated with this website are: ulcerative colitis, crohn's disease, crohns colitis, crohn, ibd, inflammatory bowel disease, nacc, national association colitis crohn's disease, proctitis, crohn's and colitis uk, charity volunteer fundraising, medical research, south wales