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Crohn's and Colitis UK
East Cornwall and West Devon Group

Crohn's and Colitis UK is the working name for the National Association for Colitis and Crohn's Disease (NACC)

 

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Crohn's and Colitis UK is the working name for The National Association for Colitis and Crohn's Disease (NACC)
A charity registered in England Number 1117148
A charity registered in Scotland Number SC038632
A company limited by guarantee in England: company number 5973370

 

Website last updated:
27 January 2012

 

 

News

Crohn's and Colitis UK (NACC) Merchandise now available online
Visit the shop

 

 

Welcome to the web pages of the
East Cornwall and West Devon group

 

Your Local Team is here for you.  We are sufferers, parents and friends

Group Telephone Number - 0845 130 6802
e-mail : ecwd@groups.crohnsandcolitis.org.uk
Facebook: www.facebook.com/crohnscolitisuk.ecwd

Upcoming events

There will be a Quiz at the Sportsmans Inn Ivybridge, on Wednesday 22nd February from 8.30pm. £2 entry and lots of prizes.

We hope to see you there.

AND

We have a provisional booking for the BOAT TRIP for 30thJune, please put the date in your diary.


 

We would like to thank Citibus for kindly collecting for us just before Christmas. we will receive one third of the money collected. Our share of the collection is £1333 which is fantastic. The presentation of the cheque will take place on 3rd February. We would also like to thank The Herald for letting us use this photograph and caption, published in the paper on Tuesday 27th December.

 

FUNDRIVERS: Plymouth bus drivers bought someChristmas cheer to customers through their fundraising fancy dress day. More than 100 Plymouth Citybus drivers took part inthe stunt which had so far raised £3,660 for the National Association of Crohn’s and Colitis and the MacmillanMustard Tree appeal. Andrew Wickham, managing director at Plymouth Citybus,praised the team who organised the fundraiser and said he was impressed by thepublic’s generosity



A flavour of the AGM held on November 20th at Derriford Hospital Medical Centre

 

 The Organising team would like to thank you for coming to the AGM and say how nice it was to meet so many of you.

Here are a few images of the event:

 
 
 
 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

RED HOT CURRY AND QUIZ EVENT

We had a really great evening, everyone
seemed to enjoy themselves and we 
would like to thank all of you who came
and supported this event.
 
 
                   BUT, we especially want to thank Logan and Sarah Pemberton. Logan cooked us three fantastic curries with accompaniments, and a lasagne, and all the food was kindly donated by Sarah's company; Jasmar Accounting Services.

All of the quiz questions - some easy and some obscure! followed the RED theme of the evening, hence the colourred featured in either the question or the answer.  We had 10 teams of up to 6 people and the winners were Max's Magnificent Team!


We are very pleased to report that we made a profit of £298.


We will be holding another event in May 2012, when the theme will be SPORT... so we look forward to seeing you then.  More details to follow....


 

                                

 

'Get together over coffee'


We had a very successful morning, although there was a bit of a wobble when we got there, as Dunelm Mill had a power cut and the cafe was closed!!  However all was well by just after 10.30 am.  We will try to arrange another one soon.  Please let us know through e-mail if you are interested in joining us for an informal chat over coffee.  We hope to be changing the venues regularly, so please contact us if you have any suggestions of where to go for these get-togethers.



   

  'Thank you' to our nurses:

IBD Nurse Award  

Do you have an IBD nurse who makes it so much easier to manage your Crohn’s or Colitis?  Does he or she take the time to listen and help you not only with the illness itself but how to make the best of life around or despite it?  Do they hold telephone appointments, provide short notice support, keep in touch to remind you when tests are needed?

 

One member said “I am one of the fortunate people who has access to an IBD nurse. Having Jeanne available is such a great help and that reassurance that if I'm not feeling particularly well between appointments, I can give her a call, or send an e-mail with my concerns. We will talk through things and if need be she will refer back to my consultant and then call me back with further advise. Knowing that I can talk to someone who knows me and my case history provides that peace of mind that I don't have to speak to the GP who doesn't always fully understand the finer details of the condition”.

 

A good IBD nurse can make a world of difference to someone’s life when they have IBD, and once again, Crohn’s and Colitis UK are celebrating these wonderful people by awarding a prize to the very best – and your vote counts!  See our website, or use the entry form sent out with NACC News to vote for your nurse now. 

 

Please support: 

Kathy Webb and Emma Tyler  (Derriford IBD specialist nurses)

If you attend a different hospital and would like to support your specialist nurse please let me have names (by e-mail )so that I can publish their names here too.

 http://www.nacc.org.uk/content/home/ibdNurseNominations.asp

 

Is this you?

 

 

Do your batteries run low very easily?  Do you need a sit down before you start sometimes?  Crohn’s and Colitis UK’s project on fatigue could make the difference to a lot of people’s lives.  Read about Sue’s story and maybe you would like to let us know how you cope with the tiredness that comes with IBD.

 

 

Fatigue, Sue’s story

 

Your mind wants to do something but your batteries go flat” is how Sue described the tiredness that comes with IBD.  She went on to say “I feel like one of those mechanical toys, like the rabbit in the Duracell advert, but the one with the cheap batteries – just getting slower and slower till you think ‘I just can’t go any more’”. You’ll be aware that Crohn’s and Colitis UK are researching the effects of tiredness – or fatigue - as a symptom, in the lives of people with Inflammatory Bowel Disease.  A Lottery grant has enabled us to do some research into this.  Why do we need to do it?  Because it’s not enough to say to politicians, decision makers,

Literate Systems

This site's description is: This Crohn's and Colitis UK East Cornwall and West Devon Group website is for people with Ulcerative Coitis and Crohn's Disease (Inflammatory Bowel Disease or IBD), their families and friends, and health professionals working in this field. It is provided by Crohn's and Colitis UK, which is a UK Charity.  Crohn's and Colitis Uk is the working name for the National Association for Colitis and Crohn's Disease (NACC). and the keywords associated with this website are: ulcerative colitis, crohn's disease, crohns colitis, crohn, ibd, inflammatory bowel disease, nacc, national association colitis crohn's disease, proctitis, crohn's and colitis uk, charity volunteer fundraising, medical research, east cornwall and west devon