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News
Crohn's and Colitis UK (NACC) Merchandise now available online
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2012 Please note that, due to illness, the hospital helpline will be out of action for the foreseeable future. For information contact the Crohn's and Colitis UK Information Line provided by trained Information Officers - Monday to Friday (between 10 am and 1 pm) Tel: 0845 130 2233, email: info@crohnsandcolitis.org.uk For a confidential and supportive listening service provided by trained volunteers contact Crohn’s and Colitis Support. This is available to anyone affected by IBD offering a safe place to talk. This is not for advice or information – Monday to Friday (between 1 pm to 3.30 pm and 6.30 pm to 9 pm), Tel: 0845 130 3344. April 2012 NB DATE CHANGE The next group meeting will now be held on Thursday 12th April 2012 at 6:00 p.m in the Surgical Resource Room, Second Floor, Tower Block at Treliske Hospital. The change is due to the Easter break. Capsule Endoscopy will be featured in the April meeting, together with 'What's New in IBD' followed by Questions & Answers. Flo Brooks, from Crohns & Colitis UK Head Office, will be a guest visitor on the night. February 2nd 2012 Dr Paul Fortun, Medical Adviser to the group, together with Jo Sheppard, IBD Specialist Nurse, fielded a range of questions from the group on a wide number of topics relating to IBD. These included:- - Hot clinic slots - greater input of GP care in mild IBD cases.
- Action plans to be drawn up for patient medication and care - greater self management.
- Frequency of colonoscopies for under and over 70 year olds and the use of sedation and pain killers during the procedure.
- Preferences of Fleet or Picolax prior to colonoscopies. Is there a preference?
- Removal of polyps, the fear of bowel cancer and the timescales for possible development of bowel cancer.
- Foecal transplant.
- Stoma reversal in Crohns disease.
Autumn 2011 Congratulations to our Chairman & IBD specialist, Jo Sheppard, on the birth of her beautiful baby girl, Elsie Rose. Summer 2011 St Just Rally The St Just Rally was held on Sunday 3rd July from 10:00am. Francis and Brian once again manned the information desk offering leaflets and advice. New Group Gastroenterologist Dr Paul Fortun has kindly agreed to to take over the role of Medical Adviser to the group. He replaces Dr Harry Dalton who will now be concentrating on his research into Hepatitis E. Thanks are expressed to Harry for his help over the years. The NACC Information Service Crohn's and Colitis UK produces a wide range of information leaflets and booklets, some of which look at employment, insurance and benefits. Two very useful ones are: Employment and IBD: A guide for employees IBD and Insurance. For more information, either call Crohn's and Colitis UK Information service on 08451 302 233 or go to the NACC website info@CrohnsAndColitis.org.uk
IBD and Water Meters
Water metering can mean increased costs for those of us with IBD, especially during a flare-up.
South West Water has a tariff called Watersure. You need to be in receipt of a means tested benefit or tax credit (including child tax credit). If you have a meter and use a lot of water it may be worth checking out. Spring 2011 Congratulations Congratulations are expressed to Jo Sheppard on her announcement during the April 2011 Group meeting, that she is expecting her third child. Jo is the Group's chairperson and IBD specialist nurse. She will continue to lead the group from the front until her maternity leave commences in June. From that date Mel Jenkin will provide support to the group in Jo's absence. Very best wishes are extended to her from the Group. Autumn 2010 Francis Potts accepted a cheque for £400 on behalf of the Mid & West Cornwall group. For many years the St Just rally have nominated Crohn's/Colitis as one of their preferred charities, and make an annual donation to the cause. Thanks to Francis and Brian for manning the stall. Spring/Summer 2009 IBD nurse We now have an IBD nurse, Jo Sheppard, based at Treliske. She will be speaking about her role at the Support Group meeting on Thursday February 5th 2009, at 7.00 pm in the Knowledge Spa at Treliske hospital. St Just Rally In autumn 2009, Geoffrey Roberts presented the group with a cheque for £900 on behalf of the St Just Rally Committee.
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Welcome to the Mid and West Cornwall Group website. About us. We are a voluntary group who try to support anyone whose life has been affected by colitis or Crohn's disease. We also try to raise funds for Crohn's and Colitis UK to support much-needed research, and to promote awareness of the conditions to the public. Meetings. Meetings are held six times a year, at 6.00 pm usually on the first Thursday of February, April, June, August, October and December, and are open to all. We now meet in the Surgical Resource Room on the 2nd floor in The Tower Block at Treliske Hospital, Truro. For details of meetings and other events, see the Diary of Events page. The next meeting will now be held on Thursday 12th April 2012 in the Surgical Resource Room on the Second Floor in The Tower Block at 6:00pm. NB This meeting has been put back a week due to the Easter break.
All old and new patients, their families, and/or friends are most welcome to attend and there is no charge. |
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